My Mom vs. Dementia: Two Years Later

October 26, 2025

Jill and I recently had dinner with two old friends — well, one of them is old (just kidding, Kevin!). For three decades now, our conversations have centered on our kids — their successes and struggles. But this time, the focus was on our parents. I would say that our parents are one of the hottest topics in all of my conversations with friends. One of our dinner realizations was that our parents did not deal as much with aging parents, because, well, because their parents most often died well before life’s cruelty imposed long-term limitations on them. In my case, three of my four grandparents died in their early 70s. So taking care of our parents is one of the few things that we did not learn by watching our own parents.

And now, our generation is learning by doing. 

I’m blessed to have both of my parents still alive – my dad is 86 and my mom is 84. Though he has a variety of physical maladies, my father is still on fire intellectually. He’s reading like a madman, and ready to discuss a variety of books. I look forward to every conversation with him. He’s always ready to commend or criticize my most recent blog post, and I love it all. He has been a spectacular father to all of us, and if you asked all of us today, we would shout to the world that his presence, support, advice, and love continue to make us better and happier. He has a fantastic attitude, but he definitely believes in the quote often attributed to Bette Davis, “Old age ain’t no place for sissies.”

No, it’s not. I’m only 63, and the t-shirt that has been tempting me to purchase it simply reads, “Everything Hurts.” My dad listens to me complain and tells me, “It does not get better with age.” Maybe in a decade or two I’ll get a shirt that says, “Everything Hurts – Even More Than It Used To.”

But my mom, that’s a different story.

I wrote about her battle with dementia almost exactly two years ago. It was just five years ago when we really started getting worried. That’s when the occasional memory lapse turned into something that crossed the line from forgetfulness to something more serious. 

Fast forward two years from my 2023 post.

I spent time with my mom several times during my most recent visit to Little Rock two weeks ago. There was nothing surprising about my visit, as I talk with my siblings often, but damn, it was still hard to see and experience. Here are a few observations.

My mom was always trim. Even though she didn’t exercise, she somehow always appeared to be in good physical condition. Why didn’t get that gene? But now, she is truly a wisp of a human being. There’s not much meat on those bones. She barely has the strength to lift her head off of the back of her chair. She needs others to help her get in or out of bed or any chair. She spends her waking hours in a comfortable chair, seemingly unbothered by her frailty.

Her memory is almost all gone. She does not recognize her children any more. When she sees my sister Martha, who visits Mom more than any of us, she sometimes thinks that Martha is her mother. We think she has dreams of various portions of her life, and when she wakes up, she may think that she’s supposed to get ready for high school, or she could be waking up thinking she’s in another decade. Then the memory of the dream fades, and it’s just living in the moment. I think she believes me when I tell her that I’m her oldest son, and she feels something when I hold her hand and talk with her, but I don’t think the memory connects to anything solid. When she has a thought that she wants to share, she starts to speak it, then forgets what she was going to say, then she forgets that she even wanted to say anything. 

Some good news – she has absolutely no anxiety. And believe me – Mom was always anxious about something. A decision (big or small) that needed to be made; trying to remember whether or not she turned off the stove; how to best help her children when they were going through a difficult time; what color of floor or wallpaper to get in the new remodel; and so much more. I remember her literally wringing her hands with worry so much of the time. And now, it all seems gone. She seems to accept where she is, she’s appreciative of her visitors and all the help that she gets, and she just seems . . . content.

I was talking about Mom with my awesome siblings this week. One of us said that the way she’s living now is a terrible way to end a spectacular life. We all agree. As I’ve wrestled with how much of her is still ‘here,’ I keep coming back to some questions I’ve never really asked before.

Reading Michael Singer’s The Untethered Soul has made me think about who we truly are. If we take away our reactions to the outside world, our emotions, our thoughts, and in my mom’s case, our memories, who are we? At her core, like all of us, my mom is the same person that she was at age 4, 14, 24, 44, 64, and now 84. Singer writes, “So now, if I ask you, “Who are you?” you answer, “I am the one who sees. From back in here somewhere, I look out, and I am aware of the events, thoughts, and emotions that pass before me.”

So who is that person in my mom’s case? Who is that person who sees from her current and quite limited vantage point? Without her memories – she is still kind, caring, and full of wonder. When she is not too tired, she enjoys hearing the stories her kids tell. The piano that she used to play with so much passion and beauty is long silent now, but when a Chopin melody drifts through her room, something in her still listens. She’s still quick to smile, and wants to laugh with us when we are laughing. Those are elements of who she has been her entire life, and it’s still evident today.

So I do believe that she’s still there, but damn, I miss the Mom I remember – the mom who guided me through all of my years and supported me every step of the way. The mom who taught me to cook and just 7 years ago was helping me with Thanksgiving dinner. The mom who loved her beautiful back yard and got so mad whenever squirrels would steal food from the bird feeders. The mom who made every child and grandchild feel loved and special. 

I don’t have any answers. I hope that AI and modern medicine figure out how to protect my generation from this insidious disease. My heart goes out to the millions of people who are doing their best to support loved ones going through memory loss. I do my best to be grateful for every awake and aware moment that I have with loved ones, for every moment in this beautiful world, and for every opportunity to use a body and mind that allow me to have incredible experiences. 

Two years ago, I wrote from heartbreak. Today, I still feel that sense of loss, but I’m striving to find peace and acceptance. Not because the disease is kinder, but because I’m doing the best I can to see my mom in spite of all she has lost. In my mom’s final years, I wish her peace and comfort — and I hope that somewhere deep inside, she knows that her love has left a beautiful legacy.

Post #140 on www.drmdmatthews.com

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NOTES

You can find my November 11, 2023 post – the first one on my mom’s battle with dementia, here.

We feel very fortunate that Mom is living in a wonderful caring environment. It’s called House of Three, and there are several throughout Arkansas. They take up to three residents at a time, and they provide round the clock care, with meals, movement, hygiene, and basic medical assistance. They can call 911 if needed. They do their best to make sure residents don’t fall and that they take the medicines they are prescribed. Medicare services come to the house. And we feel that the good people who work there truly love our mom and the other residents.

Notes on the picture collage above, clockwise, starting from the top left:

  1. Probably 1965 – My mom with me (right) and Pat (left).
  2. 1996 or 97 – Mom with Ryan and Sean
  3. 2006 – Mom with Ryan and Dawson in Tucson
  4. 2023 – Mom with Pat, Martha, and me
  5. 2022 – Mom and me
  6. 2016 – Mom with Ryan at Law School Graduation


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40 Comments

  1. Sheri Hilton says:

    Thank You for sharing this heartfelt story.

    1. Mike Matthews says:

      Thank you, Sheri!

  2. RoseAnn Hansen says:

    Dear Mike, Thank you (and Pat, Martha & Bill) for sharing the update on your Mom. I am so sorry that you are having to experience this journey with her. While it is so difficult to watch & experience the toll that dementia takes, that your Mom seems content and not anxious, should give you comfort that she feels safe and loved. You all honor her with your time spent with her and your love and care. I’ll be thinking of you all 🙂

    1. Mike Matthews says:

      Thank you, RoseAnn. I appreciate all of that!

  3. Wayne F Reel says:

    Very touching, Mike. Thank you for sharing this. A lot of food for thought!

    1. Mike Matthews says:

      Thanks, Wayne!

  4. Sheree Escoto says:

    This came at a similar time in my own mom’s life thank you for your thoughts and we really miss you at Manhattan Beach Preschool take care Sheree

    1. Mike Matthews says:

      Thank you, Sheree. I’m sorry your mom is going through a similar challenge. We will always hold a special place in our hearts for the preschool and all of the love you gave to all of our children. And it was great to see everybody last week at the Pie Festival!

  5. BILL FOURNELL says:

    Thanks for sharing this Mike. You mom’s love has definitely left a beautiful legacy. I’m certain she still feels that.

    1. Mike Matthews says:

      Thanks, Bill.

  6. Bill Bloomfield says:

    Thanks for sharing Mike. Beautifully written. I miss my parents every day of my life, but thankful they was spared what you and your mom is going through.

    1. Mike Matthews says:

      Thanks, Bill. I completely get that, and I too would wish that all of our loved ones could be spared.

  7. Sherry says:

    Thanks Mike
    . My mom is, I believe, starting to leave us this way also. Hugs to all. I sure miss momma Sue. Xxoo

    1. Mike Matthews says:

      Sorry to hear that, Sherry. Thanks for loving Momma Sue.

  8. Bill Sampson says:

    Truly touching and heartfelt Mike. Thanks for sharing.

    1. Mike Matthews says:

      Thanks, Bill.

  9. Mitchell Ozawa says:

    Touching story Mike. Heartfelt honesty. Thank you for sharing.

    1. Mike Matthews says:

      Thanks for reading, Mitch. It’s always good to hear from you.

  10. Pam says:

    My husband had vascular dementia. At first, small declines showed like getting lost. GPS helped.
    Eventually, the losses were leaps. With each leap, I took more Xanax type meds. I thought I was depressed, but I learned that I was mourning his slow death. I imagine your siblings and you are watching your father’s health. I ignored mine and am suffering from that now.
    The last time I saw Jim (Covid situation), he thought I was his mom. That didn’t break my heart because his dementia was not his fault. He did lots to stave off dementia.
    Now I’m the oldest in my close family. They don’t like to hear me say things like I won’t be at the next reunion.
    Most people want their parents to be whole and live forever. Not possible.

    1. Mike Matthews says:

      Thank you, Pam. Good to hear from you and sorry about Jim’s difficult last years. My first wife’s grandfather, Elmer Geisler, was vibrant well into his eighties. He would not say that he wouldn’t make it to the next reunion, but he would, when asked how we was doing, say with a sparkle in his eye, “I’m doing pretty good. But at my age I’m not buying any green bananas.” He was positive in all aspects of his life, and I try to channel his spirit as often as I can.

  11. Kevin McCarthy says:

    “When someone has loved us well and long, we need not buckle beneath the weight of sorrow. Instead, we can carry them with us with gratitude, completeness, and joy.”

    From one of my favorite, and recommended, books on aging and moving on….”The Beauty of what Remains” by Steve Leder.

    1. Mike Matthews says:

      Thanks, Kevin. And sorry for calling you old in the post. That was uncalled for. But it did make me laugh. Great words from Steve Leder. I’ll check it out. Thanks for reading, and for always making me think and laugh.

  12. Bill McGarvey says:

    Well put Mike,thanks for sharing! As one who has been down this uncomfortable road be thankful for the wonderful years you’ve had with your wonderful Mom….keep showing her the Love she deserves and ask your higher source to give her comfort and solace! Do the best you can!

    1. Mike Matthews says:

      Thanks, Bill. Great advice, and it’s always good to hear from you. I hope you’re still swimming and chatting in those Fullerton masters swimming workouts.

  13. Pat Matthews says:

    Mike, I’m not in control of my tears right now. Well said and beautiful. Mom is still with us and always will be. Thank you for this. Love, Brother Pat

    1. Mike Matthews says:

      Thanks, brother. Thanks for your help with this, and for all you do for our family. Hope to see you soon.

  14. Maggie says:

    Thank you for sharing this beautiful post about your Mom. It definitely hit home and helped me today when I needed it💕🙏🏼

    1. Mike Matthews says:

      Thanks, my supportive and caring friend. I’m glad it helped. So many of us are going through challenging times.

  15. Larry Peacock says:

    Thanks Mike. I remember you Mom visiting you in Malibu and being with Ryan and Sean. Such a sweet picture. It is so important to remember to say our gratitudes and joy everyday, especially to the ones dear to us. And as we age, to receive thanks and help as it is given. We are all blessed in countless ways in the various communities and families we dwell in.

    1. Mike Matthews says:

      Thanks, Larry. I totally agree, and I love it when you use your words and wisdom to remind me. You find ways to provide solace and push me at the same time. I love it.

  16. Erika White says:

    Mike, thanks for sharing. I had to endure my father’s decline into Alzheimer’s. He did his best to cover it up, but eventually it was impossible. He was a neuroscientist so I know he realized to some extent what was happening. It was heartbreaking.
    I just hope my kids won’t have to deal with a similar situation.

    1. Mike Matthews says:

      Thanks, Erika. Always good to hear from you, and I’m sorry you also dealt with this. Yes – come on medical researchers, help our generation out. Also, and I don’t think this is any guarantee, but frequent exercise, social interactions, and pushing of our brains can only help us in this prevention battle. Let’s stay healthy and push ourselves.

  17. Brad Schmidt says:

    I can relate on so much of this. I think your mom and my mom might have been great friends lol. I remember being frustrated with my mom’s dementia until I realized that she wasn’t trying to be difficult but that she was just lost in a place that should be home. Happy to discuss and share more anytime. You’re a good son!!

  18. Mikke Pierson says:

    Powerful. Thank you for sharing.

  19. Kevin Skelly says:

    Hey Mike, this is beautiful. I feel my mom, at 86, may be a few years behind yours. Her physical health is excellent but her memory is fading. I sense it in almost every conversation and visit. She, too, has kept her good humor while losing her anxiety. I wonder if there’s some connection there.

    I wish you and your family strength and wisdom in your journey with your mom.

  20. Harriett Janetos says:

    Thank you so much, Mike, for sharing such a moving portrait of your mom. As I read, I thought of the final line in The Great Gatsby “And so we beat on, boats against the current, borne back ceaselessly into the past.” On the one hand, you are grieving the loss of the mom you knew; on the other hand, you have beautiful memories to keep you going against the current–and loving siblings to help you row. We know the depth and breadth of your gratitude journal. Lucky us!

  21. mark massey says:

    Thanks be to God for devoted Moms who love their children.

  22. Susan Scheding says:

    Dear Mike,
    The photo of you and your mom is beautiful, and it mirrors all the emotions of your post. Part sorrow. Part love. Hope. Acceptance. I wanted to hug you and your siblings.

    My Aunt Priscilla passed away recently She was almost 98 and was the last of that generation. I mentioned this after her memorial, and one of my cousins loudly announced, “Yup. We’re in the firing line now.” We laughed, but I’ve been looking at this issue from the other side for awhile now.

    It’s a bit uncomfortable.

    But I am absolutely certain my children love me and will hold my hand when I get old(er) – Just as I am absolutely certain your mom feels the love from those around her.

  23. Merlin says:

    Memories with your Mom still make me smile… I believe everything you wrote, but I still have to fight to see her as anything but engaging, happy and so proud.

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